For the last 2 days I have done only what was necessary. I got up took kids to school, went back to bed, got up picked up kids, went back to bed, got up made dinner went back to bed. I bet I slept approximately 26-27 hours between Tuesday and Wednesday. This is so frustrating! Tuesday was a pain filled day and yesterday I was just exhausted from the stinking pain of Tuesday. I even got up and went to my scheduled work out yesterday afternoon hoping it would help. Nope. Instead, I came home and promptly went to bed. Frustration level at it's highest right now. http://www.apa.org/pubs/books/4441007.aspx I'm doing a workbook called "The Pain Survival Guide" right now. I've just finished the first lesson and although it was very insightful, I had to recount my pain history into a journal as an exercise of the 1st chapter. I was surprised at how emotional this was for me. Of the anger and sadness that surfaced during this exercise. I must have been holding a lot of ...
Seriously seeking more knowledge on the J-pouch. This surgery is an actual cure for UC. It's a HUGE step, not an easy one either, so that's why I'm investigating the option. I've visited with my colon doc a little. I've read all about it on the internet. What I really want to know is what it's like personally. I would love to visit with or hear from anyone who has the J-Pouch... I am curious where the best place to go for the procedure is. I'm thinking the closest place to where I am is probably Dallas. Where did you have it done? Or someone you know? I would love to hear both the pros and the cons. I want to know how it has changed your life, what you like about it, hate about it. I need to know how many surgeries it took, how you felt, what you needed during that time. Tell me everything--the good, the bad and the ugly.
It's Friday and I really thought I'd be back on my feet by now. Not so. Made it to Birthday Club lunch today but didn't last long. I was very disappointed. Tomorrow, I am supposed to sit through 3 basketball games. I'm thinking that's a little ambitious. I feel like such a wimp! I am going to try to focus on the positive now. The port is going to be really nice for the Remicade infusions. The nurses won't turn and run now when I come in. At least I hope not... I'm having such a hard time staying positive. Not sure why because of all the things I've been through medically, this is not a big deal. Or it shouldn't be anyway. I think I realized right before surgery, that this is my life. Don't get me wrong. I am not complaining about my life over all. I am blessed beyond measure, I just realized that with out Remicade --I am a sick, sick person. When I was unable to receive my last treatment, all these fears came crashing in on me. What if I have a ...
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