For the last 2 days I have done only what was necessary. I got up took kids to school, went back to bed, got up picked up kids, went back to bed, got up made dinner went back to bed. I bet I slept approximately 26-27 hours between Tuesday and Wednesday. This is so frustrating! Tuesday was a pain filled day and yesterday I was just exhausted from the stinking pain of Tuesday. I even got up and went to my scheduled work out yesterday afternoon hoping it would help. Nope. Instead, I came home and promptly went to bed. Frustration level at it's highest right now. http://www.apa.org/pubs/books/4441007.aspx I'm doing a workbook called "The Pain Survival Guide" right now. I've just finished the first lesson and although it was very insightful, I had to recount my pain history into a journal as an exercise of the 1st chapter. I was surprised at how emotional this was for me. Of the anger and sadness that surfaced during this exercise. I must have been holding a lot of ...
This month has been filled with lots not so OK days. I've struggled with chronic pain, achy joints, abdominal cramping, nausea and extreme fatigue. Here's an example of my not so OK day today: Struggled with insomnia last night so I got about 5 hours of sleep total but not all at once. Tummy cramps and nausea awoke me this morning. I lay in bed for about 30 minutes willing myself to get up but afraid the nausea might win. Took the handful of prescribed meds, vitamins and minerals needed to make my body function. Also added anti-cramping and nausea meds to the cocktail (not pictured). Ate a small gut friendly breakfast (not because I'm hungry--trust me, I'm not--but because the meds need it) and my 1 cup of coffee (more than 1 cup = more cramping + nausea). Sat in my comfy chair and caught up on social media and reviewed today's TO DO list to figure out what MUST be done today and what can be postponed. This may seem a bit lazy to most however, it is ...
Seriously seeking more knowledge on the J-pouch. This surgery is an actual cure for UC. It's a HUGE step, not an easy one either, so that's why I'm investigating the option. I've visited with my colon doc a little. I've read all about it on the internet. What I really want to know is what it's like personally. I would love to visit with or hear from anyone who has the J-Pouch... I am curious where the best place to go for the procedure is. I'm thinking the closest place to where I am is probably Dallas. Where did you have it done? Or someone you know? I would love to hear both the pros and the cons. I want to know how it has changed your life, what you like about it, hate about it. I need to know how many surgeries it took, how you felt, what you needed during that time. Tell me everything--the good, the bad and the ugly.
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