Showing posts from April, 2015

F is for Food

F is for food.

I have a love-hate relationship with food right now.

I enjoy good food, doesn't everyone? But it does not treat me with the respect I feel I am warranted.

Well my body, specifically my small intestine (all I have left), sees food as the enemy. Meals are a ticking time bomb for me. It doesn't seem to matter what I eat either. If I put food in my mouth and swallow it, my stupid intestine is standing ready with full artillery to do battle. It starts to cramp about three-fourths of the way through a meal.

F also stands for a bad word that I try not use... key word: TRY. It's pretty difficult when the pain and cramping are at their worst. The F-bomb is just so cleansing when used correctly. It should be treated with respect and only used when absolutely necessary. This reserves it's power for when it is most needed.

Over the past few days, I've eaten rice (white) with almost every meal. Breakfast...Lunch...Dinner. It seems to be one of the least offensi…

E is for Empathy

E is for Empathy
Empathy: The ability to understand and share the feelings of another. 
Empathy is NOT the same thing as hypochondria. Hypochondria is the OBSESSION with the IDEA of having a serious but undiagnosed medical condition. Empathetic people actually have the ability to share in the emotional and physical pain of another person where as a hypochondriac believes he has a condition all his own. The two are easy to confuse if you don't know a person well enough.
My hubby's name should be listed along with the synonyms of empathy. He will take on my pain as his own more often than not. If I'm having a bad pain day and share this with him, he will go from happy-go-lucky to down in the dumps with physical and mental pain of his own in a matter of minutes. If you know him, you know this too. It's for reals man!
I see this as an incredible gift and at the same time I think it can be a curse too. When I was in the hospital, he was absolutely miserable for me. I am bl…

D is for Determined

D is for Determined
Determined: Having made a firm decision and being resolved not to change it; processing or displaying resolve.
*Resolute * PURPOSEFUL * Purposive * Single-minded * Unswerving * Unwavering*  *Undaunted * Intent * Insistent * Steadfast * Staunch * Stalwart * PERSEVERING * Persistent* *Indefatigable * Tenacious * Strong-willed * UNSHAKABLE * Strong-minded * Steely* *Dedicated * Committed*

 Determination is a quality I've had to develop over years of living with chronic illness. It's possibly one of the hardest things I've ever had to do. Well maybe it's in 2nd place to parenting...

Determination doesn't come naturally to me. There have been so many days where giving up looked really good and so much easier.

I mean REALLY good and SO MUCH easier.

So good that I made an exit strategy on a particularly bad pain day.

So easy that it's options are quite limitless.

I wrote it down with great detail in my journal and when I went back a read it, it sc…

C is for Chronic

C is for Chronic 
Chronic: 1) constant, habitual               2) continuing a long time or recurring frequently
Crohn's falls in the category of autoimmune chronic illness. It has chronic pain, chronic inflammation, chronic diarrhea, chronic ulceration, chronic depression, etc...
Every morning when I get out of bed I spend the first 30 minutes (at least) trying to get my abdominal pain under control. The rest of the day is spent trying to maintain that control while also trying to function as close to normal as possible. I don't tell you this so you will feel sorry for me, I want to share why I am not always on top of my game. 
It takes a great deal of mental strength to deal with the level of pain Crohn's brings. Here are some of the characteristics you might see in me when I am dealing with pain above a 4 or 5 on the pain scale the medical community likes to use (0= no pain to 10=worst pain ever). I live somewhere around the 3-4 zone on good days. 
1) I am very quiet.…