Little Elijah with the Ostomy

Elijah (<--click here)

This is a little boy with an ileostomy because of Ulcerative Colitis.

He makes me feel so many, many different emotions.

I cried watching this.
I am not a crier.

I am overcome at how "matter of fact" he is about his ostomy.
I am mad at a disease for taking a part of his body from him.
I am sad that Elijah's early years have been full of pain and disease.
I am happy because he is obviously surrounded by people who love and support him.
I am thankful for his mom who allowed him to do this.
I am anxious about how other kids will treat him because of his ostomy.
I am excited for him to live a healthy UC-free life.
I am encouraged by his bravery.
I am inspired by his openness.
I am beyond any more words to describe how my heart feels about this 1 minute 50 second video.



Comments

Post a Comment

Popular posts from this blog

UHG!

Image
For the last 2 days I have done only what was necessary. I got up took kids to school, went back to bed, got up picked up kids, went back to bed, got up made dinner went back to bed. I bet I slept approximately 26-27 hours between Tuesday and Wednesday. This is so frustrating! Tuesday was a pain filled day and yesterday I was just exhausted from the stinking pain of Tuesday. I even got up and went to my scheduled work out yesterday afternoon hoping it would help. Nope. Instead, I came home and promptly went to bed. Frustration level at it's highest right now. http://www.apa.org/pubs/books/4441007.aspx I'm doing a workbook called "The Pain Survival Guide" right now. I've just finished the first lesson and although it was very insightful, I had to recount my pain history into a journal as an exercise of the 1st chapter. I was surprised at how emotional this was for me. Of the anger and sadness that surfaced during this exercise. I must have been holding a lot of
Read more

There's an oil for that...

Image
You know in the Bible where it talks about anointing with oil for healing of physical ailments? To be specific: Mark 6:13 and James 5:14 are just a couple of them. Anyway...turns out, it's true. I know, imagine that. I have a good friend who has been singing the praises of essential oils for about a year now and all the amazing things she and her family have experienced because of them. ** Here's where I'm going to reveal my prideful, know-it-all, ugly self. It's not pretty and I like to pretend that I do not have this in me but I do. ** I was truly happy that she and her family were having such great results like not getting sick as often as before, no one has needed antibiotics for infections and they are getting real relief from allergies. All of which is awesome but like I said, the ugly part of me surfaced and was whispering in my ear that no one in her house has a chronic illness or chronic pain so really, how effective would it be for me?  Um, yeah... so t
Read more

New Year ~ New Me

After my ileostomy procedure in September I had one good month until symptoms of Ulceritive Colitis set in again. My surgeon decided it was time to remove the remaining part of my rectum and the surgery was set for December 13, 2011. This was supposed to be a fairly short 3 day hospital stay and an easier surgery than the ileostomy... supposed to be anyway... Going in for surgery the morning of December 13th is the last clear thing I remember, the rest is a hazy combination of what I've been told happened and my own drug induced memory.  Surgery went well and with out complication. My doc found my rectum to be in horrible shape, completely eaten up with the UC. No wonder I was in so much pain! So he removed the rectum and proceeded to close up the surgical site and  send me to recovery. Here is where things took a wrong turn. I do not remember waking up in recovery at all. Of all the surgeries I've had, I always remember waking in recovery. The next thing I know, I am i
Read more